CHEMO
AND RADIATION TIPS FROM AND FOR THE TNBC FOUNDATION SITE GALS AND ALL
WHO COME HERE TO SHARE
対訳。revised
19/09/2008
by tofu50
★”にゃまにゃま”さんのご協力に感謝します:
TIPSをまとめた TNBCFGalsも訳したtofu50も医師でも医療関係者でもない単なるTNBC患者。治療方法、薬、化粧品、食べ物 などについては必ず主治医にご確認ください。 |
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Empower yourself!
Educate yourself about your pathology reports and
treatments through reliable internet websites and/or books. Ask about
preserving fertility prior to starting chemo. There is free
options. In Burnaby BC for Canada. If you have mixed
feelings about doing chemo vs. alternative medicine, make
peace with it as much as possible. Practice visualizations; speak with
a therapist
who understands. There is no such
thing as a stupid question! Keep asking
questions until you get the answers you need to make informed
decisions. If you have any
questions during the months you are taking chemo, be sure
to contact your oncologist. Have your D
levels checked before chemo. This is a simple blood
test. If they are low, ask your oncologist if you can safely take
vitamin D3
during your treatments. Accept that you
will not always feel positive; you will have bad days and
that’s ok. Don’t be afraid
to ask others for help. People are more than willing to
help; they just don’t know what to do for you unless you ask
specifically. |
1.
自分
の病理結果と治療について、信頼できるインターネットや書籍で学習する。
3.フリーオプションがある。カナダ、Burnaby BC(British Columbia)
6.決心するのに必要な情報が得られるまで、質問する。
9.自分がいつもプラス思考ではいられないことを認める。落ち込む時期もあるけれ
ど、それは普通のこと。
|
MOST IMPORTANT
ONE? When you are
getting your “team” together after you are first
diagnosed…you know…all the people who beg you to let them know what
they can do
for you….have your Mom/sister/dearest friend work up a 6 MONTH or 1
YEAR
commitment sheet, acknowledging that treatment goes on for a long
time.
Ask them to cook dinner once a week for 6 months, to come over the
first Sunday
of every month to help clean for one year, etc. The hardest part can be
when
everyone has moved on and forgotten, and you are still bald,
menopausal, and
feeling alone. One gal says that
toward the end, the worst part was that food didn’t taste
like anything. Fear not; the
clouds do part, your hair grows back and you can almost
delight in you favorite snacks within a very short time of when it’s
over!
Until then, by all means go from couch to bed and back no more than
twice a
day. Eat only what you feel like eating. Order your family around and
make them
scrub the toilets. Now is the time to play the cancer card, big time! Canada has a
volunteer driver program for appointments, so call them if you
need help. Have a family
member or friend help you prepare meals in advance for your
family and freeze them, or ask a family member or friend to prepare the
meals
for you. (You may not feel up to eating them, but they will be there
for your
family on the day that you have chemo, and the days following chemo). Tell your husband
and entire family that the doctor prohibits you
from doing housework during this time. This can be for as long as a
year! Do
not push for any longer than that, or they will become suspicious. Make a “woman
cave”…spare bedroom or a reading corner where you can sleep
and just be alone. Do this prior to starting treatments. Make arrangements
in advance for childcare. Especially for the day of chemo
and possibly for days following chemo. |
一番大事なことは? 12.最初の診断の後、あ
なたのことを気にかけてくれる母親、姉妹、親友と共に"チー
ム"と
して団結していく時に、、治療が長い間続く事を認識し、半年または一年の役割分担シートを作り上げる。
18.“女の隠れ家” を
作る、眠れて、一人になれる予備の寝室あるいは読書コーナー。化学療法を始める前にしておく。
|
Do your errands
the days before chemo, or have someone do them for you. Expect hair loss
with several of the chemo meds. Check with your
Oncologist. Prepare ahead of time by purchasing a wig, caps, several
scarves,
hats. Get a couple of wigs that are completely different from your
regular
hair. Realize that these are all hot! Shave your head
before your hair comes out on its own. Some of the gals
have used painter’s tape and even duct tape to remove any
stray hair that may linger. Buy a set of
satin pillowcases for your use exclusively. Some gals found
them at Target; others found them at Bed Bath and Beyond. They are so
soothing,
and your beautiful almost bald, and baldhead will simply glide over
them. You may
experience times when your head “hurts’ when your hair is falling
out. That is normal. There is a
Canadian product…Nisim shampoo for helping hair re-growth. In the US, the
gals say there are 3 products from Nioxin which are
suggested for hair re-growth. They are Scalp Therapy, Follicle Booster
and
Cytonutrient. One gal said that
she had bad nails with ACT.They become thin, some even
fall off, brittle, stained looking, some black marks which never left.
She had
the same problem which started while she was on Taxotere. These meds
can also
cause some of your toenails to become thicker. |
21.化学療法の前に用事を済ませるか、誰かに
それをやってもらう。
25.自分用にサテンの枕カバーを買う。何人かはTarget(アメリカの百貨店)で見つけ、他の人はBed Bath やBeyond見つけた。髪が殆どな
い貴方の美しい頭を心地よい感触で包んでくれるでしょう。
27.カナダの製品、Nisimシャンプー
は育毛を助ける。
|
If you have a
port on the left side, you can get a Rx from your oncologist
so that you do not have to wear your shoulder belt while driving. This
can
irritate your port. Take someone you
can laugh with to chemo. It helps pass the time more
quickly. Telephone support
to talk one on one to someone who understands. Cancer
connect in Canada. It has been
suggested to sleep in a recliner for the first 4-5 days
following each chemo treatment. It helps prevent nausea and headaches.
If it is
possible, move the recliner to the bedroom before the first chemo, just
to be
prepared. Some prefer to have it in another room. Possibly “the woman’s
cave”. Make sure that
you have all the prescriptions filled that you will be
taking prior to each treatment! Pack a “chemo
bag”. Put in magazines, your favorite soft blanket, book,
iPod, crossword puzzle book, newspaper, snacks, water, paper/pen,
notebook,
soothing music, salty foods such as pretzels. Do not put your favorite
songs on your iPod to listen to, or you
will neurologically reprogram your mind and throw up when you hear them
in the
future. From the time
they start administering the med, try visual imaging. Imagine
those cancer cells being swept away by the ocean waves, or taken away
on the
wings of a beautiful bird, or being caught in the bubbles of bath
water,
popping and floating down the drain. Peaceful imaging is suggested.
Peaceful
thoughts are suggested. Some have
experienced the “blurred” vision almost as soon as they start
administering the meds. Almost all have said that they experienced the
“blurred” vision for days following chemo. It has been difficult for
most to
even type on the computer, and reading or watching the television
presents a
problem. Be patient…things can change, when going for your chemo treatments. Don’t set yourself up for a rigid schedule as delays do happen, i.e.; bookings, WBC not where they have to be to take the treatments. The first treatment can take as long as 6-7 hours. |
31.もしポートが左側なら、運転中のシートベルトがポートをこするた
め、付
けられないので、腫瘍内科医からの証明書をもらうこと。
37.あなたの好きな歌をiPodに入
れないこと。 38.薬物が投与され始めたら、視覚的なイメージを思い浮かべる。がん
細胞
が、海の波に一掃される、美しい鳥の羽で運び去られる、風呂の湯の泡に捕まえられて、ポンとはじけて、排水溝に流れて行くと想像する。平和なイメージをお
勧めする。平和な思索をお勧めする。
40.気長にいきましょう…化学療法をやっていると、状況が変わることがある。遅れが生じるので厳 しいスケ ジュー ルを設定しない。例えば、予約、治療に必要に値に達しない白血球。最初の治療は6-7時 間かかることもあ る。 |
Have someone go
with you to your chemo treatments, or take you and pick you
up. You will not be able to drive and should not be driving a vehicle. Do not go to the
mall, or shop for food afterwards. You may think you are
feeling fine, but others have tried this and it is not a wise decision. Do not lie in the
sun after treatment. If you are
felling up to it, go out for a good meal after treatment. It can
be the last good meal you will enjoy for a few days. Wear something
comfortable to treatments. Stay up the night
before so you can sleep during treatments. Emend above all!!! Do take all of
the drugs they give you for nausea on time! You might want to
try Compazine for the 5th and 6th day after the
anti-emetics were to be stopped, for “breakthrough” nausea, which may
happen. |
41.化学療法に誰かと一緒に行く、あるいは車
で拾っ
て行ってもらう。車を運転できないだろうし、運転するべきではない。 43.治療後に日光浴しない。
45.治療には寛げるものを着る。
49.吐き気止め薬をやめた後の5-6日
目に、起こるかもしれない吐き気を"切り抜ける(break throughの意味)"ためにCompazine(頭痛薬)を試してみるのもよいかもしれない。(不確かなので医師に必ず確認のこと!tofu50) |
Some gals have
used Lorazepam when they are feeling overwhelmed by
everything. Avoid spicy
foods, unless you crave them. Eat what you crave. Avoid sugar to
lessen mouth sores (and a good idea in general). Day of chemo have
a light meal. Some have suggested to carb starve the day
of chemo, and as soon as they start administering the meds, carb
load. To lessen dry
mouth, suck on hard candies, popsicles, or ice chips. One gal
has recommended fudgesicles as she said the ice chips made her feel
nauseated.
Do the ice chips during infusion. Start this before chemo, continue
during
chemo treatments. Use magic
mouthwash to prevent mouth sores. This is one of the
prescriptions you should have filled before you start chemo. Do not look when
they shoot the nasty red one (Adriamyicin) in your vein! |
51.ある女性たちは全てに打ちのめされたと感じた時にラゼパム(精神安定剤)を使った。 54.もし切望するのでなければスパイシーな食事は避ける。切望するものは何でもは食べなさい。 55.口の痛みを和らげるのに砂糖を使わない。(普段も痛みに砂糖を使
わない) 56.化学療法の日には軽い食事。化学療法の日に炭水化物を取らない
で、薬の投与が始まったらすぐ、炭水化物を取ることを勧める人もい
る。
58.魔法のうがい薬を口の痛みを防ぐのに使う。これは化
学療法前に出してもらうべき処方の一つ。
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Drink 3 liters
(quarts) of water a day at least while on chemo, and start a day or
two before chemo. Drink lots and lots of water before chemo, during
chemo and
continue to do so every day after chemo. Water detoxifies the kidneys. Drink more fluids
clear in color such as apple juice, ginger ale, tea,
broth, jellos, Gatorade, High-C. Note: Some people found
that they could not tolerate fruit
juices as they can cause diarrhea. Cauliflower/radishes
help with bad taste in the mouth. Have them use
mephitic tape if you are allergic to adhesive tape for
dressings/incisions post op. You may notice a
chemical smell on your clothing and bed linens. This is
from the chemo. You will also notice this smell after using the toilet.
You are
excreting the chemicals from your body. Again, stay hydrated as
it
flushes all those chemicals out of your body. You may feel a
burning sensation in the bladder and in the vaginal area,
and some gals have reported that they felt this as soon as the
meds were
being administered. You may experience a burning sensation when you
void. There
is a possibility that the vagina and the urethra will become dry, due
to the
chemo. While you are
having the meds administered, you will probably have to use
the bathroom. If you happen to look in the mirror, do not be alarmed at
your
skin color. It will have changed to a grayish color. That is also from
the
chemo meds. If one of your
meds is Adriamyicin, do not be alarmed if your urine is red.
That is why you must continue to drink the water. Eat a low fat,
high fiber diet. Constipation can present a problem during
chemo treatments. |
61.化学療法中は少なくとも3リットルの水を飲む、化学療法の1-2日
前から始める。たくさんの水を化学療法の前、化学療法中に飲み、化学療法後も毎日続ける。水は腎臓を解毒する。
64.カリフラワー/ラ
ディッシュは口のひどい味を和らげる。 66.服やベッドの寝具に化学物質の匂いを感じるかもしれない。トイレ
の後に
もこの匂いを感じるだろう。あなたの体から化学物質が出でいるから。これらの化学物質全てを体から流しだすため、水分補給状態を保つこと。
71.便秘に備えて処方された薬をタイムリー
に摂取する。
|
For nausea eat
raw almonds and crystallized ginger together. Eat bananas,
potatoes and meats to maintain a normal potassium level.
Potassium is needed for muscles to function properly. A change in diet
may occur since your taste for foods that were your
favorites may not taste as good now. Some have said that they went back
to the
“comfort foods” of their childhood, such as soups and grilled cheese
sandwiches. Eat what you want
and when you want. You must eat!! Eat small meals.
Some have suggested as many as 6 meals a day. Make an effort to
exercise even if it is just for a little while each day. Don’t overdo it
with exercising but also don’t believe them when they tell
you “if you get lymphodema it never goes away”. Do not overdo. Be
flexible. If you are feeling better, plan an outing or
chores. Please do them in small frames of time, until you know what you
can
handle. You may think you have the energy, but may not. This cannot
only set
you back physically, but it is emotionally frustrating. |
72.吐き気のために生のアーモンドと砂糖漬けのショウガを一緒に食べ
る。
|
Do sleep as much
as possible. Some say it is like sleeping off a hangover. Have something to
do at night when the steroids keep you awake. Don’t try
to fight it, and sleep when you can. Do things for yourself. Take a bubble bath, go out to lunch or do a little bit of shopping on the days you feel up to it. Go to see funny movie or rent them to watch at home. Read a funny book. Go topless (bald) often. With some great earrings and makeup, you’ll look fabulous! Do the “Look Good…Feel Better” class. Make plans for
the future, such as preparations for planting a garden, or
planning a weekend get-a-way. One bit of advice
from someone was that even after a year, you feel like
you are in a dream.
|
81.できるだけ眠る。寝て二日酔いを治すようなものだという人もいる。 82.化学療法の日、その後数日間もシャワーを浴びるととても眠くなると何人かが報告している。 シャ ワーに入る前に、すぐに助けが求められるように近くに人にいてもらう。
84.ある研究によると、睡眠に助けが必要な場合、化学療法中はUnisom(睡眠薬)を使うべき。習慣性はない。これは正看護師の義理の兄弟に勧められた。
87.未来の計画を立てる、例えば庭造りの準備や週末の遠出の計画。 (注)”Look
Good…Feel
Better” |
RADIATION TIPS
Don’t believe
that radiation is “nothing compared to chemo”, or that it has
“virtually no side-effects, save a little fatigue.” Take a break if
your skin needs it no matter what the docs might tell you.
This is your body and you know it better than anyone! Don’t freak out
about skipping a session. They’ll just add it to the end
and you need to listen to your body when it says enough is enough. Do have them give
you a script for
BIAFINE. NOTE: most insurance companies
won’t cover it. So it will cost you between $39.00-$65.00. Stay out of the
sun and tanning beds. (Don’t count on beach umbrellas to
protect you) Buy an Aloe Vera
plant. They are always good to have in the house for burns
and if you need it for rads, it will be there. Take some of the leaves
from the
plant and put them in the fridge…..mmmmmmm feels so good! Get Aquaphor.
It’s a cream, almost a gel that you can get at Target,
Walgreens, anywhere. It seems to help a lot, especially if you use it
from the
very start of rads, even before you start getting red. Take a
little
bottle in your purse, and put it on right after treatment. You
are not
supposed to use this product or any other cream, deodorant, etc., beforehand as
they will affect the rads. It has been
suggested that you use only Dove unscented soap. Some soaps can
irritate the area being radiated, causing it to burn. Consult with your
oncologist as to what they recommend. Don’t spend money on those silly Aveeno oatmeal packs. They contain oatmeal powder and nothing else, which you can also make by putting generic oats in your own blender. Wear something
loose, silky or soft against your body such as a camisole.
Nothing tight since it would rub against the tender skin. Some have
suggested that you wear a mans cotton shirt. It is suggested
that you wear pure cotton, (laundered many times), white men’s
undershirts inside out so the soft, white cotton is touching your skin.
Iron
then to sterilize them. No seams will ever rub the sensitive area above
the
shoulders and neck region or the underarms because there are no rough
edges. |
93. BIAFINE(やけど用クリーム) の処方箋を もらう。注意:殆どの保険会社はカバーしていない。値段$39.00-$65.00の間。
98.身体をひねって位置あわせする前に、台の上を寛げるようにするこ
とをためらわない。まるでレンガか大きなセメントかなにかのように感じる小さな頭支えがあるが、悪い場所に置くと、その後20分とても不快になる。
103.セッション中に “目のヨガ”(意味不明)をする。時間が早く過ぎるし、かすみ目に役に立つ。 |
You are not alone! The gals on the TNBC Foundation Site are here for you every day!! | あなたは一人ではありません。TNBC Foundationサ
イトのギャルズは 毎日あなたのためにいます。 |